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  1. 2023

  2. Integrated Short-term Palliative Rehabilitation to improve quality of life and equitable care access in incurable cancer (INSPIRE): A multi-national European research project

    Bayly, J., Ahmedzai, H., Blandini, M. G., Bressi, B., Caraceni, A. T., Vasconcelos, J., Costi, S., Fugazzaro, S., Guberti, M., Guldin, M-B., Hauken, M., Higginson, I., Laird, B., Ling, J., Normand, C., Oldervoll, L., Payne, C., Prevost, T., Stene, G. B., Vanzulli, E., & 3 othersVeber, E., Economos, G. & Maddocks, M., 15 May 2023, (Accepted/In press) In: Palliative Care and Social Practice. p. 1 29 p.

    Research output: Contribution to journal › Article › peer-review

  3. Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy

    Bradshaw, A., Ostler, S., Goodman, C., Batkovskyte, I., Ellis-Smith, C., Tunnard, I., Bone, A. E., Barclay, S., Vernon, M., Higginson, I. J., Evans, C. J. & Sleeman, K. E., 14 Mar 2023, In: Frontiers in Public Health. 11, 1058736.

    Research output: Contribution to journal › Article › peer-review

  4. Translation and cross-cultural adaptation of the Integrated Palliative Care Outcome Scale in Hindi: Toward capturing palliative needs and concerns in Hindi speaking patients

    Bhardwaj, T., Chambers, R. L., Watson, H., Srividya, Higginson, I. J. & Hocaoglu, M. B., Mar 2023, In: Palliative Medicine. 37, 3, p. 391-401 11 p.

    Research output: Contribution to journal › Article › peer-review

  5. Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)

    Hocaoglu, M., Murtagh, F., Walshe, C., Chambers, R., Maddocks, M., Sleeman, K., Oluyase, A., Dunleavy, L., Bradshaw, A., Bajwah, S., Fraser, L., Preston, N. & Higginson, I., 20 Feb 2023, (Accepted/In press) In: Health and Quality of Life Outcomes. bf96511f-f5d0-4324-a9de-9da9f4bc3b98.

    Research output: Contribution to journal › Article › peer-review

  6. 2022

  7. 25 Years: Looking Back, Looking Forward

    Periyakoil, V. S., Von Gunten, C. F., Block, S., Higginson, I. & Weissman, D., 1 Dec 2022, In: Journal of palliative medicine. 25, 12, p. 1761-1766 6 p.

    Research output: Contribution to journal › Article › peer-review

  8. Charitably funded hospices and the challenges associated with the COVID-19 pandemic: a mixed-methods study (CovPall)

    Garner, I. W., Walshe, C., Dunleavey, L., Bradshaw, A., Preston, N., Fraser, L. K., Murtagh, F. E., Oluyase, A. O., Sleeman, K. E., Hocaoglu, M., Bajwah, S., Chambers, R. L., Maddocks, M. & Higginson, I. J., Dec 2022, In: BMC Palliative Care. 21, 1, 176.

    Research output: Contribution to journal › Article › peer-review

  9. Symptom management in people dying with COVID-19: multinational observational study

    Oluyase, A. O., Bajwah, S., Sleeman, K. E., Walshe, C., Preston, N., Hocaoglu, M., Bradshaw, A., Chambers, R. L., Murtagh, F. E. M., Dunleavy, L., Maddocks, M., Fraser, L. K. & Higginson, I. J., 8 Sep 2022, In: BMJ Supportive and Palliative Care. 12, 4, p. 439-447 9 p.

    Research output: Contribution to journal › Article › peer-review

  10. Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia

    Leniz Martelli, L., Gulliford, M., Higginson, I., Bajwah, S., Yi, D., Gao, W. & Sleeman, K., Sep 2022, In: BJGP Open. 72, 722, p. E684-E692

    Research output: Contribution to journal › Article › peer-review

  11. Optimising breathlessness triggered services for older people with advanced diseases: a multicentre economic study (OPTBreathe)

    Yi, D. H., Reilly, C., Gao, W. & Higginson, I., 15 Aug 2022, (E-pub ahead of print) In: Thorax. 0, p. 1-7 7 p., 218251.

    Research output: Contribution to journal › Article › peer-review

  12. Preferences of Older People With a Life-Limiting Illness: A Discrete Choice Experiment

    BuildCARE, Johnston, B. M., Daveson, B., Normand, C., Ryan, K., Smith, M., McQuillan, R., Higginson, I., Selman, L. & Tobin, K., Aug 2022, In: Journal of pain and symptom management. 64, 2, p. 137-145 9 p.

    Research output: Contribution to journal › Article › peer-review

  13. Formal and Informal Costs of Care for People With Dementia Who Experience a Transition to Hospital at the End of Life: A Secondary Data Analysis

    Leniz, J., Evans, C. J., Yi, D., Bone, A. E., Higginson, I. J. & Sleeman, K. E., 9 Jul 2022, In: Journal Of The American Medical Directors Association. 23, 12, p. 2015-2022.e5

    Research output: Contribution to journal › Article › peer-review

  14. COVID-19: Impact on Pediatric Palliative Care

    Scott, H. M., Coombes, L., Braybrook, D., Roach, A., Harðardóttir, D., Bristowe, K., Ellis-Smith, C., Higginson, I., Gao, W., Bluebond-Langner, M., Farsides, B., Murtagh, F. EM., Fraser, L. K. & Harding, R., 1 Jul 2022, In: Journal of pain and symptom management. 64, 1, p. e1-e5

    Research output: Contribution to journal › Article › peer-review

  15. Face and content validity, acceptability, feasibility, and implementability of a novel outcome measure for children with life-limiting or life-threatening illness in three sub-Saharan African countries

    Namisango, E., Bristowe, K., Murtagh, F. E. M., Downing, J., Powell, R. A., Atieno, M., Abas, M., Ali, Z., Luyirika, E. B. K., Meiring, M., Mwangi-Powell, F. N., Higginson, I. J. & Harding, R., 1 Jul 2022, In: Palliative medicine. 36, 7, p. 1140-1153 14 p.

    Research output: Contribution to journal › Article › peer-review

  16. Integrating palliative care into the ICU: a lasting and developing legacy

    Curtis, J. R., Higginson, I. J. & White, D. B., Jul 2022, In: Intensive Care Medicine. 48, 7, p. 939-942 4 p.

    Research output: Contribution to journal › Article › peer-review

  17. Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study

    Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A. O., Sleeman, K. E., Higginson, I. J. & Walshe, C., Jun 2022, In: Journal of the Royal Society of Medicine. 115, 6, p. 220-230 11 p.

    Research output: Contribution to journal › Article › peer-review

  18. Intelligent Palliative Care Based on Patient-Reported Outcome Measures

    Sandham, M. H., Hedgecock, E. A., Siegert, R. J., Narayanan, A., Hocaoglu, M. B. & Higginson, I. J., May 2022, In: Journal of pain and symptom management. 63, 5, p. 747-757 11 p.

    Research output: Contribution to journal › Article › peer-review

  19. 'The whole of humanity has lungs, doesn’t it, we are not all the same sort of people': patient preferences and choices for an online, self-guided chronic breathlessness supportive intervention (SELF-BREATHE)

    Reilly, C., Bristowe, K., Roach, A., Chalder, T., Maddocks, M. & Higginson, I., 26 Apr 2022, (Accepted/In press) In: ERJ Open Research.

    Research output: Contribution to journal › Article › peer-review

  20. Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia

    Leniz, J., Gulliford, M., Higginson, I. J., Bajwah, S., Yi, D., Gao, W. & Sleeman, K. E., 7 Apr 2022, (E-pub ahead of print) In: The British journal of general practice : the journal of the Royal College of General Practitioners. 72, 722, p. e684-92

    Research output: Contribution to journal › Article › peer-review

  21. Change in Activity of Palliative Care Services during the Covid-19 Pandemic: A Multinational Survey (CovPall)

    Sleeman, K. E., Cripps, R. L., Murtagh, F. E. M., Oluyase, A. O., Hocaoglu, M. B., Maddocks, M., Walshe, C., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Higginson, I. J. & Fraser, L. K., 1 Mar 2022, In: Journal of palliative medicine. 25, 3, p. 465-471 7 p.

    Research output: Contribution to journal › Article › peer-review

  22. Association of primary and community care services with emergency visits and hospital admissions at the end of life in people with cancer: a retrospective cohort study

    Leniz, J., Henson, L. A., Potter, J., Gao, W., Newsom-Davis, T., Ul-Haq, Z., Lucas, A., Higginson, I. J. & Sleeman, K. E., 23 Feb 2022, In: BMJ Open. 12, 2, p. e054281 e054281.

    Research output: Contribution to journal › Article › peer-review

  23. “You can do it yourself and you can do it at your convenience”: internet accessibility and willingness of people with chronic breathlessness to use an internet-based breathlessness self-management intervention during the COVID-19 pandemic

    Reilly, C. C., Bristowe, K., Roach, A., Maddocks, M. & Higginson, I. J., 21 Feb 2022, (E-pub ahead of print) In: ERJ Open Research. 8, 1, 00557-2021.

    Research output: Contribution to journal › Article › peer-review

  24. Implementation of the Mental Capacity Act: a national observational study comparing resultant trends in place of death for older heart failure decedents with or without comorbid dementia

    Beattie, J. M., Higginson, I. J., McDonagh, T. A. & Gao, W., 20 Jan 2022, (E-pub ahead of print) In: BMC Medicine. 20, 1, 30.

    Research output: Contribution to journal › Article › peer-review

  25. Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians

    Krajnik, M., Hepgul, N., Wilcock, A., Jassem, E., Bandurski, T., Tanzi, S., Simon, S. T., Higginson, I. & Jolley, C., 19 Jan 2022, In: BMC pulmonary medicine. 22, 1, 41.

    Research output: Contribution to journal › Article › peer-review

  26. Response to Zhou (2021) “Comment on Evans et al. (2021) ‘Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care’”

    OPTCare Elderly, Jan 2022, In: International Journal of Nursing Studies. 125, 104119.

    Research output: Contribution to journal › Comment/debate › peer-review

  27. Equal but inequitable: response of specialist palliative care and hospice services to people from ethnic minority groups with COVID-19- an observational study (CovPall)

    Bajwah, S., Koffman, J., Hussain, J. A., Bradshaw, A., Hocaoglu, M., Fraser, L. K., Oluyase, A. O., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Higginson, I., Walshe, C. & Murtagh, F. E. M., 2022, In: BMJ Supportive & Palliative Care.

    Research output: Contribution to journal › Article › peer-review

  28. Prohibit, protect or adapt: The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall)

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F. E. M., Oloyase, A., Fraser, L. K. & Higginson, I., 2022, In: International Journal of Health Policy and Management.

    Research output: Contribution to journal › Article › peer-review

  29. Symptom Control and Survival for People Severely ill With COVID: A Multicentre Cohort Study (CovPall-Symptom)

    CovPall study team, 2022, (Accepted/In press) In: Journal of pain and symptom management.

    Research output: Contribution to journal › Article › peer-review

  30. Symptom management in people dying with COVID-19: multinational observational study (CovPall)

    Oluyase, A., Bajwah, S., Sleeman, K., Walshe, C., Preston, N., Hocaoglu, M., Bradshaw, A., Chambers, R., Murtagh, F., Dunleavy, L., Maddocks, M., Fraser, L. & Higginson, I., 2022, In: BMJ Supportive & Palliative Care.

    Research output: Contribution to journal › Article › peer-review

  31. 2021

  32. Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R. L., Preston, N., Fraser, L. K., Murtagh, F. E. M., Higginson, I. J. & Maddocks, M., 29 Dec 2021, (E-pub ahead of print) In: Palliative medicine. 36, 2

    Research output: Contribution to journal › Article › peer-review

  33. Characteristics and mortality rates among patients requiring intermediate care: a national cohort study using linked databases

    SPACE, Dec 2021, In: BMC Medicine. 19, 1, p. 48 48.

    Research output: Contribution to journal › Article › peer-review

  34. Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review

    Bayly, J., Bone, A. E., Ellis-Smith, C., Tunnard, I., Yaqub, S., Yi, D., Nkhoma, K. B., Cook, A., Combes, S., Bajwah, S., Harding, R., Nicholson, C., Normand, C., Ahuja, S., Turrillas, P., Kizawa, Y., Morita, T., Nishiyama, N., Tsuneto, S., Ong, P., & 3 othersHigginson, I. J., Evans, C. J. & Maddocks, M., Nov 2021, In: BMJ Open. 11, 12, e048417.

    Research output: Contribution to journal › Article › peer-review

  35. Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools

    Ellis-Smith, C., Tunnard, I., Dawkins, M., Gao, W., Higginson, I. & Evans, C., 22 Oct 2021, In: BMC Palliative Care. 20, 1, p. 168 1 p., 10.1186/s12904-021-00845-9.

    Research output: Contribution to journal › Article › peer-review

  36. Preferences and priorities to manage clinical uncertainty for older people with frailty and multimorbidity: a discrete choice experiment and stakeholder consultations

    Tunnard, I., Yi, D., Ellis-Smith, C., Dawkins, M., Higginson, I. J. & Evans, C. J., 14 Oct 2021, In: BMC Geriatrics . 21, 1, 553.

    Research output: Contribution to journal › Article › peer-review

  37. Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data

    Leniz Martelli, J., Higginson, I., Yi, D. H., Ul-Haq, Z., Lucas, A. & Sleeman, K., Oct 2021, In: Palliative Medicine. 35, 9, p. 1691-1700 10 p.

    Research output: Contribution to journal › Article › peer-review

  38. Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable-an observational study

    CovPall study team, Bajwah, S., Koffman, J., Hussain, J., Bradshaw, A., Hocaoglu, M. B., Fraser, L. K., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K. E., Higginson, I. J., Walshe, C. & Murtagh, F. E. M., 13 Sep 2021, In: BMJ Supportive & Palliative Care.

    Research output: Contribution to journal › Article › peer-review

  39. The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L. K., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F. E. M., Bajwah, S., Sleeman, K. & Higginson, I., Sep 2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-470 11 p.

    Research output: Contribution to journal › Article › peer-review

  40. Community-based short-term integrated palliative and supportive care reduces symptom distress for older people with chronic noncancer conditions compared with usual care: a randomised controlled single-blind mixed method trial

    Evans, C., Bone, A., Yi, D. H., Gao, W., Morgan, M., Taherzadeh, S., Maddocks, M., Wright, J., Lindsay, F., Bruni, C., Harding, R., Sleeman, K., Gomes, B. & Higginson, I., 1 Aug 2021, In: International Journal of Nursing Studies. 120, 103978.

    Research output: Contribution to journal › Article › peer-review

  41. Preparedness to Face the COVID-19 Pandemic in Hospice and Palliative Care Services in the Asia-Pacific Region: A Rapid Online Survey

    Lin, C. P., Boufkhed, S., Kizawa, Y., Mori, M., Hamzah, E., Aggarwal, G., Namisango, E., Higginson, I. J., Goh, C. & Harding, R., 1 Jul 2021, In: American Journal of Hospice and Palliative Medicine. 38, 7, p. 861-868 8 p.

    Research output: Contribution to journal › Article › peer-review

  42. Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services

    On behalf of the CovPall study team, Jul 2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.

    Research output: Contribution to journal › Article › peer-review

  43. Dying at home during the pandemic

    Higginson, I. J., Brooks, D. & Barclay, S., 8 Jun 2021, In: The BMJ. 373, n1437.

    Research output: Contribution to journal › Editorial › peer-review

  44. Acute care utilisation towards the end of life and the place of death for patients with serious mental disorders: a register-based cohort study in South London

    Wilson, R., Gaughran, F., Whitburn, T., Higginson, I. J. & Gao, W., May 2021, In: Public Health. 194, p. 79-85 7 p.

    Research output: Contribution to journal › Article › peer-review

  45. ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

    Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L. K., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A. O., Sleeman, K. E., Higginson, I. J. & Walshe, C., May 2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

    Research output: Contribution to journal › Article › peer-review

  46. Influences on emergency department attendance among frail older people with deteriorating health: a multicentre prospective cohort study

    Bone, A., Evans, C., Henson, L., Etkind, S. N. & Higginson, I., 23 Feb 2021, (Accepted/In press) In: Public Health.

    Research output: Contribution to journal › Article › peer-review

  47. Preparedness and capacity of Indian palliative care services to respond to the COVID-19 pandemic: an online rapid assessment survey

    Lin, C-P., Boufkhed, S., Pai, A., Namisango, E., Luyirika, E. BK., Sleeman, K., Costantini, M., Peruselli, C., Higginson, I., Ekstrand, M., Harding, R., Salins, N. & Bhatnagar, S., 17 Feb 2021, (E-pub ahead of print) In: Indian journal of palliative care. 27, 1, p. 152-171 20 p.

    Research output: Contribution to journal › Review article › peer-review

  48. How many people will need palliative care in Scotland by 2040? A mixed method study of projected palliative care need and recommendations for service delivery

    Finucane, A., Bone, A., Etkind, S., Carr, D., Meade, R., Munoz-Arroyo, R., Moine, S., Iyayi-Igbinovia, A., Evans, C., Higginson, I. & Murray, S., 3 Feb 2021, In: BMJ Open. 11, 2, e041317.

    Research output: Contribution to journal › Article › peer-review

  49. Higginson IJ and Hocaoglu MB. Chapter 29.2 ‘Clinical audit, quality improvement, and safety in palliative medicine’, in Nathan I. Cherny and others (eds), Oxford Textbook of Palliative Medicine, 6 edn (Oxford, 2021.)

    Hocaoglu, M. & Higginson, I., 1 Jan 2021, Oxford: Oxford University Press. 15 p.

    Research output: Book/Report › Book › peer-review

  50. Pharmacological and nonpharmacological interventions to improve symptom control, functional exercise capacity and quality of life in interstitial lung disease: an evidence synthesis

    Bajwah, S., Colquitt, J., Loveman, E., Bausewein, C., Almond, H., Oluyase, A., Dzingina, M., Maddocks, M., Higginson, I. J. & Wells, A., Jan 2021, In: ERJ Open Research. 7, 1

    Research output: Contribution to journal › Article › peer-review

  51. Avaliação de Processo de um Estudo de Viabilidade de Metodologia Mista para Identificar Doentes Hospitalares com Necessidades de Cuidados Paliativos em Portugal

    Antunes, B., Rodrigues, P. PEREIRA., Higginson, I. J. & Ferreira, L., 2021, In: Acta Medica Portuguesa. 34, 13

    Research output: Contribution to journal › Article › peer-review

  52. Exploring costs, cost components, and associated factors among people with dementia approaching the end of life: A systematic review

    Leniz, J., Yi, D., Yorganci, E., Williamson, L. E., Suji, T., Cripps, R., Higginson, I. J. & Sleeman, K. E., 2021, In: Alzheimer's and Dementia: Translational Research and Clinical Interventions. 7, 1, e12198.

    Research output: Contribution to journal › Review article › peer-review

  53. Relationships between prolonged physical and social isolation during the COVID-19 pandemic, reduced physical activity and disability in activities of daily living among people with advanced respiratory disease

    Fettes, L., Bayly, J., de Bruin, L. M., Patel, M., Ashford, S., Higginson, I. J. & Maddocks, M., 2021, In: Chronic Respiratory Disease. 18

    Research output: Contribution to journal › Article › peer-review

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